Umuhungu muto w’umunyembaraga wo mu Burusiya arwana n’indwara ya neuroblastoma

Hari umukinnyi w'intambara w'intagondwa witwa Kuvatov Emin. Afite imyaka 8, kandi akomoka mu Burusiya. Kuki twishimira kwihangana kwe? Dore inkuru ye ikomeye.

Emin yasuzumwe indwara ya neuroblastoma mu myaka irenga itanu ishize, ikaba yarashyizwe mu cyiciro cya IV hamwe n’impinduka mu magufwa ndetse no kwiyongera kwa MYCN. Yakorewe imiti igabanya ubukana bw’imitsi, abagwa, aterwa uturemangingo tw’umubiri, ndetse anavurwa mu buryo butandukanye, bituma agabanuka. Ariko, yongeye gusubira inyuma, mu magufwa no mu tunyangingo tw’imitsi, nubwo yahabwaga imiti ya kabiri nka bevacizumab, irinotecan, temozolomide, ndetse no guterwa imiti ya allogeneic. Mu 2025, MIBG scan yagaragaje ko hari ibisebe bishya byagiye bikura, bituma umuryango we ushakisha uburyo bwo ku rwego rw’isi.

Muri BIOOCUS, ikibazo cya Emin cyasuzumwe ku buntu n'inzobere zacu, zagaragaje ko GD2 CAR-T ari uburyo bwiza bwo kuvura indwara. Nyuma yo kuvura mbere ya fludarabine na cyclophosphamide, uturemangingo twa CAR-T twashyizwemo nta ngorane. Kwaguka kwarakomeye, agaciro kabyo karazamuka cyane ku munsi wa 7. Itsinda ryacu ryakurikiranye neza ibyari byagize ingaruka mbi, kandi indwara zemeza ingaruka z'ubuvuzi ku kibyimba cye cyari cyaratandukanye nabi.

Ibyiza bya BIOOCUS biri mu buryo bwiza kandi bugamije abarwayi ndetse n'ibicuruzwa bya CAR-T bigezweho. Dutanga imiti ijyanye n'igihe mu buryo butanga ubufasha, hamwe na serivisi zirimo guhuza ibikorwa mpuzamahanga neza, ubujyanama mu miryango, no gukurikirana nyuma yo kuvurwa. Ababyeyi ba Emin barashimira ubuvuzi bw'impuhwe bwabagabanyirije impungenge muri iki gihe gikomeye.