He tamaiti pakari nō Rūhia e whawhai ana ki te neuroblastoma

Tērā tētahi toa toa pakari, ko Kuvatov Emin tōna ingoa. E waru ōna tau, ā, nō Rūhia ia. He aha tātou i mihi ai ki tōna manawanui? Anei tana kōrero kaha.

I kitea a Emin he mate neuroblastoma i ngā tau e rima kua pahure ake nei, i whakaritea hei IV me te metastasis o te hinu wheua me te whakanui ake i te MYCN. I whai ia i te chemotherapy whakaoho kaha, te pokanga, te whakawhitinga pūtau take autologous, me te rongoā rerekētanga, ā, i tutuki ai te whakaoranga tuatahi. Heoi, i puta anō ngā hokinga mai, tae atu ki ngā wheua me ngā kōpū lymph, ahakoa ngā maimoatanga raina tuarua pēnei i te bevacizumab, irinotecan, temozolomide, tae noa ki te whakawhitinga allogeneic. I te tau 2025, i whakaatuhia e ngā matawai MIBG te whanaketanga me ngā whara hou, i akiaki i tōna whānau ki te tūhura i ngā kōwhiringa ā-ao.

I BIOOCUS, i arotakehia te take a Emin mō te kore utu e ā mātou tohunga, ā, i kitea e rātou te GD2 CAR-T hei rongoā whakaora whai hua. Whai muri i te whakatōnga o mua ki te fludarabine me te cyclophosphamide, i whakauruhia ngā pūtau CAR-T me te kore he raruraru. He pakari te whānui, ā, i piki ake ngā uara tino i te rā 7. Nā te aroturukitanga mataara a tā mātou tīma i ārai i ngā pānga kino, ā, i whakaū te pathology i te pānga o te rongoā ki tana pukupuku kāore i tino rerekē.

Ko ngā painga o BIOOCUS kei roto i tā mātou huarahi kounga teitei, e aro ana ki te tūroro, me ngā hua CAR-T hou. Ka tukuna e mātou he rongoā tika i roto i te taiao tautoko, me ngā ratonga tae atu ki te whakaritenga ā-ao, te tohutohu whānau, me te aroturuki i muri i te maimoatanga. E mihi ana ngā mātua o Emin ki te manaaki aroha i whakamama i ō rātou manukanuka i tēnei wā uaua.