He tamaiti toa nō Rūhia e whawhai ana ki te neuroblastoma

Tērā tētahi tamaiti toa, ko Lev Kovalev tōna ingoa. E whitu noa iho ōna tau, ā, nō Rūhia ia. He aha tātou i kī ai he toa ia? Anei tana kōrero whakahihiri.

I kitea a Lev he mate pukupuku neuroblastoma i ngā tau e rua ki muri, he mate pukupuku uaua i horapa haere ahakoa ngā maimoatanga tuatahi. I tino pouri tōna whānau i te rongonga mō te pānga o te hinu wheua me ētahi atu raruraru i whakaaturia i roto i ngā matawai me ngā koiora. Whai muri i te whakapau kaha ki ngā kōwhiringa i ngā hōhipera o te rohe, tae atu ki te chemotherapy me te pokanga, ka haere tonu te mate, me ngā tohu o te metastasis me te iti o te mahi hinu wheua. I te hiahia nui ki tētahi putanga hou, ka rapu ōna mātua i te maimoatanga matatau ki tāwāhi, ā, ka kitea e rātou a BIOOCUS, he pokapū matua i roto i te immunotherapy pūtau.

I BIOOCUS, i whiwhi a Lev i te tiaki whaiaro mai i te tīmatanga. I whakaratohia e tā mātou tīma hauora o te ao he aromatawai kore utu i runga i ana tuhinga hauora, me te ārahi i te whānau i roto i ia taahiraa me te aroha me te tohungatanga. I te mohio ki te kaha o ngā maimoatanga auaha, i tukuna e mātou te rongoā pūtau GD2 CAR-T i muri i te whakatikatika i mua ki te fludarabine me te cyclophosphamide. I maeneene te tukanga, nā ā mātou whare hou me ngā kaimahi tautoko i whakarite kia iti rawa te mamae mō tētahi tūroro taitamariki. I muri i te werohanga, i tino whanake ngā pūtau CAR-T a Lev, ā, i eke ki ngā taumata whakamiharo i te rā 10 me tua atu, ā, i hua ake ai he whakapainga nui ki tōna āhua. I whakaatuhia e te MRI whai muri te iti o te rahi o te pukupuku me te pupuhi, he tohu i te huringa o tana pakanga.

Ko te mea e wehewehe ana i a BIOOCUS ko tā mātou whakapau kaha ki te ratonga kounga teitei me ngā hua hou. E aro ana tā mātou rongoā CAR-T ki ngā tohu motuhake pēnei i a GD2, e tuku ana i te tumanako ki ngā wāhi e kore e taea e ngā maimoatanga tuku iho. Nā te tīma ratonga tūroro i whakahaere ngā mahi katoa, mai i te āwhina visa ki ngā wāhi noho whakamarie, kia kore ai e ahotea ngā whānau o tāwāhi. E whakanui ana te whānau o Lev i te tautoko reo maha me te manaaki i te ao, i te pō, i meinga ai rātou kia noho kāinga.