He keikikāne wiwo ʻole mai Rusia e hakakā ana me ka neuroblastoma

Aia kekahi keiki kāne wiwo ʻole i kapa ʻia ʻo Lev Kovalev. He ʻehiku wale nō ona makahiki, a no Rusia mai ʻo ia. No ke aha mākou e kapa aku ai iā ia he wiwo ʻole? Eia kāna moʻolelo hoʻoikaika.

Ua ʻike ʻia ʻo Lev me ka neuroblastoma i ʻelua mau makahiki i hala aku nei, he maʻi ʻaʻai paʻakikī i holomua me ka nānā ʻole i nā lāʻau lapaʻau mua. Ua kaumaha loa kona ʻohana i ka wā i ʻike ai lākou e pili ana i ka pili ʻana o ka iwi a me nā pilikia ʻē aʻe i hōʻike ʻia i nā scans a me nā biopsies. Ma hope o ka hoʻopau ʻana i nā koho ma nā haukapila kūloko, me ka chemotherapy a me ke ʻoki ʻana, ua hoʻomau ka maʻi i ka holomua, me nā hōʻailona o ka metastasis a me ka hana haʻahaʻa o ka iwi. Me ka makemake nui i kahi holomua, ua ʻimi kona mau mākua i ka lāʻau lapaʻau holomua ma waho a ua ʻike iā BIOOCUS, kahi kikowaena alakaʻi i ka immunotherapy cellular.

Ma BIOOCUS, ua loaʻa iā Lev ka mālama pilikino mai ka hoʻomaka ʻana. Ua hāʻawi kā mākou hui lapaʻau honua i kahi loiloi manuahi e pili ana i kāna mau moʻolelo lapaʻau, e alakaʻi ana i ka ʻohana ma o kēlā me kēia ʻanuʻu me ke aloha a me ka ʻike loea. Ma ka ʻike ʻana i ka hiki o nā lāʻau lapaʻau hou, ua lawelawe mākou i ka lāʻau lapaʻau cell GD2 CAR-T ma hope o ka hoʻomaʻamaʻa mua ʻana me fludarabine a me cyclophosphamide. Ua maʻalahi ke kaʻina hana, mahalo i kā mākou mau hale hana kiʻekiʻe loa a me nā limahana kākoʻo i hoʻolaʻa ʻia nāna i hōʻoia i ka ʻoluʻolu ʻole no kahi maʻi ʻōpio. Ma hope o ka hoʻokomo ʻana, ua hoʻonui maikaʻi ʻia nā cell CAR-T a Lev, e hōʻea ana i nā pae kupaianaha i ka lā 10 a ma hope aku, e alakaʻi ana i ka hoʻomaikaʻi nui ʻana i kona kūlana. Ua hōʻike ka MRI hahai i ka emi ʻana o ka nui o ka puʻupuʻu a me ka edema, e hōʻailona ana i kahi huli i kāna kaua.

ʻO ka mea e hoʻokaʻawale ai iā BIOOCUS ʻo kā mākou kūpaʻa i ka lawelawe kiʻekiʻe a me nā huahana ʻoi loa. Hoʻopili kā mākou CAR-T therapy i nā māka kikoʻī e like me GD2, e hāʻawi ana i ka manaʻolana i kahi e hāʻule ai nā lāʻau kuʻuna. Ua mālama ka hui lawelawe maʻi i nā logistics āpau, mai ke kōkua visa a hiki i nā hale noho ʻoluʻolu, e hoʻolilo ana i ka ʻike i mea ʻole no nā ʻohana o ka honua. Hoʻomaikaʻi ka ʻohana o Lev i ke kākoʻo multilingual a me ka mālama ʻana i ka hola a puni i hoʻolilo iā lākou i ka home.