Indaba Yesiguli | Owasinda Ku-Acute Myeloid Leukemia (AML-M2): Iminyaka Engu-9 Ngemva Kokufakelwa, Ukwamukela Amandla Ethemba Nokuzalwa Kabusha
Ngo-2014, ezinyangeni ezinhlanu nje ngemuva kokuba ngubaba, uMnu. Liang (igama elingelona elomunye umuntu) wathola ukuxilongwa okubuhlungu: i-Acute Myeloid Leukemia (AML-M2). Umhlaba wakhe washintsha njengoba ebona amaqiniso anzima obuthakathaka bempilo. Naphezu kokwelashwa ngamakhemikhali kabili endaweni, isimo sakhe asizange sixazululwe, okwamenza yena nomndeni wakhe bafuna ukwelashwa okukhethekile. Bafika eLu Daopei Hospital, lapho kwaklanywa khona uhlelo lokwelashwa oluphelele nguDkt. Zhang Xian kanye nethimba loMnyango We-Hematology, okwaletha ithemba emndenini njengoba uLiang ethola ukululama okuphelele.
Nokho, impi yayingakapheli. Enomgomo wokuthola ukwelashwa okuhlala njalo, uLiang wadluliselwa eqenjini likaDkt. Zhou Jirui ukuze alungiselele ukufakelwa kweseli le-stem elisindisa impilo. Inqubo yokufakelwa yayinzima, iphawulwa ubuhlungu obukhulu bomzimba, ukucindezeleka kwengqondo kwezikhathi eziningi zokwelashwa ngamakhemikhali, kanye nokucindezeleka ngokwezimali. Kodwa-ke, phakathi nalezi zinselele, uLiang wabambelela ekukholelweni okungaguquki emandleni okuphila nothando.
Ngomhlaka-15 kuNhlolanja 2015—ezinsukwini ezimbalwa ngaphambi koNyaka Omusha waseShayina—wathola ukufakelwa kwamaseli e-stem kayise okushintsha impilo yakhe, okwaphawula ukuqala kokuzalwa kwakhe kabusha. Ukululama okulandelayo kwaba nzima, kunezinkinga ezifana ne-hemorrhagic cystitis, i-cytomegalovirus (CMV) viremia, kanye nesifo esibangelwa yi-graft-versus-host (GVHD), kodwa ngokunakekelwa kochwepheshe kukaDkt. Zhou kanye nethimba lakhe lezokwelapha elizinikele, uLiang wathuthuka kancane kancane.
Eminyakeni eyisishiyagalolunye ngemuva kokufakelwa isitho, uLiang useluleme ngokugcwele futhi uphila impilo ejwayelekile, kokubili emkhakheni wakhe siqu kanye nowezobungcweti. Ukuhlolwa kwakhe kwezokwelapha kubonisa ukusimama okuzinzile, amazinga ezakhi zofuzo ze-AML1-ETO ehla kancane kancane, futhi isimo sakhe siyaqhubeka sizinzile ngaphandle kwezimpawu zokubuyela emuva.
Ecabanga ngohambo lwakhe, uLiang wabelane, “Phakathi kobuhlungu nokuhlupheka, ngabambelela ethembeni, elaba ukukhanya okungiqondisa ebumnyameni. Ukuphila kufana nembewu; ngothando nokunakekela, kuzokhula futhi kuqhakaze. Ngikholwa ukuthi kungakhathaliseki ukuthi sikuphi, uma sibambelela okholweni lwethu, singama siqine njengomuthi, sibhekane nanoma yisiphi isiphepho.”
Ubonge kakhulu uDkt. Zhou, uDkt. Wang Jingyu, kanye nabasebenzi abahlengikazi eLu Daopei Hospital, abanekhono labo elingaguquki kanye nesihawu sabo okwamnika ithuba lesibili lokuphila. Ubonge nomkakhe ngokusuka enhliziyweni, owanikeza uthando olungapheli kanye nokusekelwa ngenkathi enakekela ingane yabo ngezikhathi ezinzima kakhulu.
Indaba kaLiang ayiyona nje into yokunqoba kwezokwelapha kodwa futhi iwubufakazi bothando, isibindi, kanye namandla okukholelwa. Isebenza njengesikhuthazo kubo bonke iziguli ezilwa izimpi zazo. Umyalezo wakhe ezigulini ezikanye nazo: "Kholwa emandleni ethemba, kholwa kodokotela bakho, kholwa emndenini wakho, futhi okubaluleke kakhulu, kholwa kuwe. Kungakhathaliseki ukuthi indlela engaphambili ingase ibonakale inzima kangakanani, ngokholo enhliziyweni yakho, uzokhanya kakhulu, ukhanyise indlela eya phambili."
Isizinda Sesiguli:
- Iminyaka Yesiguli: 32
- Ukuxilongwa: I-AML-M2 (ene-AML1-ETO fusion gene positive kanye nokungajwayelekile kwe-chromosome-Y)
- UkwelashwaNgemva kokwehluleka kwe-chemotherapy, wafakelwa i-haploidentical stem cell esebenzisa amangqamuzana kayise ngoFebhuwari 2015 eLu Daopei Hospital.
- Izinkinga ngemuva kokutshala: I-cystitis ephuma igazi, i-CMV viremia, kanye ne-GVHD ebukhali (uhlobo lwesikhumba).
- Isimo Samanje: Ukuphumula okuzinzile, iminyaka engu-9 ngemva kokufakelwa, ukuphila impilo enempilo nejwayelekile.
Indaba kaLiang iwubufakazi bomthelela oshintsha impilo wezindlela zokwelapha ze-hematology zanamuhla, kanye nethemba isiguli ngasinye esingalithola ngokunakekelwa okunekhono okunikezwa eSibhedlela iLu Daopei.