Kōrero mō te Tūroro | Te Tangata i Ora i te Mate Pūkahukahu Myeloid Acute (AML-M2): 9 Tau i Muri i te Whakatōnga Tinana, e Awhi ana i te Mana o te Tumanako me te Whānautanga Anō

I te tau 2014, e rima noa ngā marama i muri i tana noho hei matua tāne, i whiwhi a Mr. Liang (he ingoa huna) i tētahi tātaritanga whakamataku: Acute Myeloid Leukemia (AML-M2). I hurihia tōna ao i a ia e pāngia ana e ngā āhuatanga uaua o te ngoikore o te ao. Ahakoa i whiwhi ia i ngā rongoā chemotherapy e rua i tōna rohe, kāore anō kia whakatauhia tōna āhua, ā, i akiaki ia me tōna whānau ki te rapu maimoatanga motuhake ake. I tae atu rātou ki te Hōhipera o Lu Daopei, i reira i hangaia ai he mahere maimoatanga whānui e Tākuta Zhang Xian me te tīma i te Tari Hematology, ā, i kawea mai ai te tumanako ki te whānau i te taenga atu o Liang ki te whakaoranga katoa.

Heoi, kāore anō kia mutu te pakanga. Me te whāinga kia ora tonu, ka whakawhitia a Liang ki te tīma a Tākuta Zhou Jirui hei whakarite mō te whakawhitinga pūtau take haploidentical whakaora ora. He uaua te tukanga whakawhitinga, i kitea i te mamae nui o te tinana, te taumahatanga hinengaro o ngā rauna maha o te chemotherapy, me te taumahatanga pūtea. Heoi, i roto i ēnei wero, i mau tonu a Liang ki te whakapono pumau ki te mana o te ora me te aroha.

I te 15 o Pēpuere, 2015—he torutoru noa ngā rā i mua i te Tau Hou Hainamana—i whiwhi ia i te werohanga o ngā pūtau take o tōna matua, he mea whakarerekē i tōna ao, hei tohu i te tīmatanga o tōna whānautanga anō. He uaua te whakaoranga i muri mai, me ngā raruraru pērā i te hemorrhagic cystitis, te cytomegalovirus (CMV) viremia, me te acute graft-versus-host disease (GVHD), engari nā te manaakitanga tohunga a Tākuta Zhou me tana tīma hauora, i pai haere a Liang.

E iwa tau i muri i te whakawhitinga o te pūtau, kua tino ora a Liang, ā, kei te noho noa ia i roto i tōna ao whaiaro me te ao mahi. E whakaatu ana āna whakamātautau hauora he pumau te whakaoranga, me te heke haere tonu o ngā taumata ira honohono AML1-ETO, ā, kei te pumau tonu tōna āhua me te kore he tohu o te hokinga mai.

I a ia e whakaaroaro ana ki tana haerenga, ka kōrero a Liang, "I waenganui i te mamae me te pōuri, i pupuri ahau i te tumanako, ā, koinei te māramatanga e ārahi ana i ahau i roto i te pōuri. He rite te ora ki te purapura; mā te aroha me te manaaki, ka tupu, ka puāwai. E whakapono ana ahau ahakoa kei hea tātou, ki te pupuri tātou i tō tātou whakapono, ka taea e tātou te tū pakari pērā i te rākau, e tū pakari ana i roto i ngā āwhā katoa."

I whakapuaki ia i tōna mihi nui ki a Tākuta Zhou, ki a Tākuta Wang Jingyu, me ngā nēhi o te Hōhipera o Lu Daopei, nā te mea nā te ngaio me te aroha i hoatu he whai wāhitanga tuarua ki a ia ki te ora. I whakapuaki hoki ia i tōna mihi nui ki tana wahine, nā te aroha me te tautoko mutunga kore i a ia e tiaki ana i tā rāua tamaiti i ngā wā tino uaua.

Ehara i te mea ko te kōrero a Liang he kōrero mō te wikitoria hauora anake, engari he tohu hoki mō te aroha, te maia, me te mana o te whakapono. He mea whakahihiko tēnei mō ngā tūroro katoa e whawhai ana i ā rātou ake pakanga. Ko tāna karere ki ōna hoa tūroro: "Whakapono ki te mana o te tumanako, whakapono ki ō tākuta, whakapono ki tō whānau, ā, ko te mea nui, whakapono ki a koe anō. Ahakoa te uaua o te huarahi kei mua, me te whakapono i roto i tō ngākau, ka tiaho mārama koe, ka whakamārama i te huarahi whakamua."

Papamuri o te Tūroro:

• Tau o te Tūroro32
• TātaritangaAML-M2 (me te hononga ira AML1-ETO pai me te rerekētanga o te ira-Y)
• Te maimoatangaWhai muri i te korenga o te angitu o te rongoā chemotherapy, i tukuna ia ki te whakawhitinga pūtau take haploidentical mā te whakamahi i ngā pūtau o tōna matua i te Hui-tanguru 2015 i te Hōhipera o Lu Daopei.
• Ngā raruraru i muri i te whakawhitingaTe mate pukupuku toto, te viremia CMV, me te GVHD whakapeka (momo kiri).
• Tūnga o NāianeiTe murunga pumau, 9 tau i muri i te whakawhitinga wheua, te noho hauora, te noho noa.

He tohu te kōrero mō Liang i te pānga o ngā maimoatanga toto hou ki te oranga, me te tumanako ka taea e ia tūroro te wheako mā te tiaki pūkenga e whakaratohia ana i te Hōhipera o Lu Daopei.