- Daaweyn
- Markhaatiyada
- Neuroblastoma
- Buro adag
- Markhaatiyada
- TILS
- Daaweynta Unugyada NK
- Myasthenia Gravis (MG)
- Leukemia-da Lymphoblastic ee Ba'an (B-ALL)
- Lupus Erythematosus oo nidaamsan (SLE)
- Leukemia-da Lymphoblastic ee Ba'an (T-ALL)
- Lymphoma-ka aan Hodgkin ahayn (NHL)
- Myeloma badan (MM)
- Lymphom-ka Unugga B-B ee Kala-baxa
- Leukemia-da B-lymphocytic
- Myeloma
Cirbadda Sodium-ka ee Nusinersen: Rajada laga qabo Qalliinka Muruqyada Lafdhabarta
Sida ay u Shaqeyso
Nusinersen Sodiumwaa daaweyn liddi ku ah dareenka oligonucleotide (ASO) oo bartilmaameedsanaysa hidda-wadaha SMN2.
Iyadoo wax ka beddelaysa habka isku-xidhka, waxay kor u qaadaysaa wax soo saarka shaqada Borotiin SMN ah, oo muhiim u ah badbaadada iyo shaqada neerfaha dhaqdhaqaaqa.
Daawada waxaa si toos ah loogu shubaa dareeraha maskaxda iyada oo loo marayo daloolka lumbar, taasoo hubinaysa inay si wax ku ool ah u gaarto meelaha ay dhibaatadu saameysey.
Faa'iidooyinka Caafimaad
Nooca SMA I:
- Waxay kordhisaa heerka badbaadada 2 sano laga bilaabo 50% taariikhi ah ilaa in ka badan 80%.
- Waxay wanaajisaa shaqooyinka dhaqdhaqaaqa sida fadhiga madaxa iyo xakamaynta madaxa.
- Waxay yareysaa ku tiirsanaanta qalabka neefsashada.
SMA Nooca II iyo III:
- Waxay hoos u dhigtaa horumarka cudurka.
- Waxay ilaalisaa ama hagaajisaa dhaqdhaqaaqa addimada iyo shaqada neefsashada.
- Daaweynta ka hor calaamadaha (tusaale ahaan, dhallaanka cusub) waxay horseedi kartaa korriin dhaqdhaqaaq oo ku dhow caadi.
Saamaynta Muddada Dheer:
- Xogta dabagalka shan sano ah waxay muujineysaa horumar joogto ah oo ku yimid shaqada dhaqdhaqaaqa iyada oo aan wax hoos u dhac ah la dareemin.
Gaaritaanka Caalamiga ah:
- Tan iyo markii FDA ay ansixisay 2016, in ka badan 100,000 oo bukaan ah oo ku kala nool 60+ waddan ayaa ka faa'iidaystay, iyagoo daboolaya dhammaan noocyada SMA.
Caddeyn ka timid Cilmi-baaris
Tijaabooyinka kiliinikada (tusaale ahaan, EMBRACE, ENDEAR, CHERISH) oo ku lug leh 274 bukaan bandhig horumarro muhiim ah:
- Jawaabta marxaladaha muhiimka ah ee mootada: 51% ka fiican kooxaha xakamaynta (p
- Horumarka dhibcaha HINE-2: 26% ka fiican kantaroolada (p
Daraasadaha lagu sameeyay dhalinyarada iyo dadka waaweyn ayaa sidoo kale muujinaya natiijooyin shaqo oo kordhay (tusaale ahaan, HFMSE, RULM) 26 bilood kadib.
Qiimaha BIOOCUS
AnigaWareegga Daaweynta Bilowga ah (4 Cirbado): Xirmo dhammaystiran oo dhan $200,000, oo ay ku jiraan:
- Kharashka daawada: $50,000 halkii irbad.
- Kharashka duritaanka, qaybta isbitaalka, iyo baaritaanka.
- Adeegyada wareejinta garoonka diyaaradaha iyo gaadiidka silsiladda qabow.
Daaweynta KadibBukaanadu waxay qaadan karaan qiyaasta afraad guriga iyagoo ku jira sanduuq silsilad qabow oo 2-8°C ah waxayna heli karaan taageero loogu talagalay qiyaasaha dayactirka afartii biloodba mar.
AnigaIsbarbardhigga Qiimaha Caalamiga ah
| Dalka/Gobolka | Qiimaha halkii duritaan (USD) | Wadarta 4 Qiyaasood oo Rarista (USD) | Kharashka Sannadka Koowaad (USD) | Qoraallo |
| BIOOCUS, Shiinaha | 50,000 | 200,000 | 200,000 (bilow) | Waxaa ku jira adeegyo buuxa |
| Mareykanka | 125,000 | 500,000 | 750,000 (6 irbadood) | Lacag kabitaan ma jiro |
| Ustaraaliya | 87,500 (Kabitaan la'aan) | 350,000 | 525,000 (6 irbadood) | PBS waa la kabay
|
Keydinta: Qiimaha BIOOCUS wuxuu bixiyaa ilaa 60% dhimis kharash marka loo eego qiimaha aan la taageerin ee Mareykanka iyo Australia.
Daryeel Dhammaystiran oo loogu talagalay Bukaannada Caalamiga ah
Waxaan taageero heer sare ah u fidinnaa bukaanada caalamiga ah ee raadinaya daaweyn Shiinaha, annagoo hubinayna waayo-aragnimo aan kala go 'lahayn oo raaxo leh.
Kahor Daaweynta
- La-talinta CaafimaadkaQorshayaasha daaweynta ee shaqsiga ah oo ku salaysan diiwaanka bukaanka.
- Kooxda Khabiirka: Baaritaanka qaybaha kala duwan si loo saxo.
- SaadkaCaawinta Visa-ka, isku-dubaridka dhigaalka, iyo diyaarinta duulimaadka.
Inta Lagu Jiro Daawaynta
- Hoyga & Safarka: Hoteellada iyo gaadiidka garoonka diyaaradaha ayaa la diyaariyey.
- Daryeelka CaafimaadkaDaaweyn ka socota Xarunta Maareynta Caafimaadka Nukliyeerka ee Shiinaha, oo ay ku jiraan tignoolajiyad horumarsan iyo shaqaale xirfad leh.
- Jadwalka Duritaanka: Waxaa la qaataa maalmaha 1aad, 14aad, iyo 28aad, iyadoo la eegayo 6 saacadood oo ka dambeeya duritaanka si loo hubiyo badbaadada.
Daaweynta Kadib
- Qiyaasta Guriga La QaadanayoCirbad afraad ayaa lagu bixiyaa sanduuq silsilad qabow ah.
- Taageerada socotaCaawinta qiyaasaha dayactirka afartii biloodba mar, oo ay ku jiraan soo iibsiga iyo rarista.
Adeegyo Dheeraad ah
- Isgaarsiinta: Dajinta WhatsApp iyo WeChat si fudud loogu xiriiro.
- Helitaanka VIP-daAdeegyada caafimaadka oo si degdeg ah loo raadraaco iyada oo loo marayo kooxo u heellan.
- Baahiyaha Maalinlaha ah: Taageero hoy, gaadiid, cunto, dukaameysi, iyo turjumaad xirfadeed.
Submit An Free Inquiry
Our medical team will make an evaluation for you, based on the information you provided. This procedure is free of charge.