Te wikitoria i te mate pukupuku toto: Te haerenga manawanui me te tumanako a tetahi kotiro taitamariki i te Hōhipera o Lu Daopei

I te Whiringa-ā-rangi 2016, i kitea a Wenwen (ingoa huna) he mate toto toto nui (acute T-cell lymphoblastic leukemia) 11 tau te pakeke, he mate i puta mai i waho o te whakatūpato. I tere te piki haere o tōna āhua, me ngā wā e tata ana ki te toru wiki te roa o ngā wā e morearea ana ki te ora. I tino pouri ōna mātua, e whawhai ana ki te wehi me te koretake i ia rā. I te titiro whakamuri, ka maumahara te whaea o Wenwen ki aua rā pōuri me te whakawhetai me te whakahīhī—me te whakawhetai mō te aroha me te tautoko i whakawhiwhia ki a rātou, me te manaaki aroha i whakaratohia e te tīma i te Hōhipera o Lu Daopei.

I te korenga o ngā maimoatanga tuatahi i te ranea hei whakaora i tōna mate toto toto, ka rapu te whānau o Wenwen i ētahi atu huarahi, ā, i te mutunga ka tūtohutia rātou ki te Hōhipera o Lu Daopei e ētahi atu tūroro. Ahakoa ngā mea kāore i te mōhiotia me ngā whakataunga uaua kei mua, ka tīmata tā rātou haerenga mai i Xinjiang ki Hebei ki te rapu i te tumanako. E whakaahua ana te whaea o Wenwen i tō rātou ngākau māhaki me te whakawhetai nui: "Ko te whiriwhiri i te Hōhipera o Lu Daopei te whakataunga pai rawa atu i taea e mātou te mahi. Me i kore tēnei hōhipera me Tākuta Zhou Jiarui, tērā pea kāore mātou e noho tahi i tēnei rā."

I tōna taenga atu, ka whakaurua tonutia a Wenwen ki te hōhipera, ā, nā te tīma hauora, i arahina e Tākuta Zhou Jiarui, i whakarato te tīma hauora i te manaaki tino pai, i āwhina i te whānau kia mārama ki ngā uauatanga o te mate pukupuku toto, me te whakatō hoki i te maia me te tumanako ki a rātou. Nā roto i ētahi wāhanga o te chemotherapy me te whakawhitinga toto i whakaritea e tōna matua, ka tīmata te ara o Wenwen ki te ora. Ahakoa he uaua, i angitu te whakawhitinga toto, ā, ahakoa ngā raruraru pēnei i ngā mate huaketo me te GVHD ate, i whakahaere pai te tīma o te hōhipera i tana maimoatanga.

Inaianei, e whitu tau i muri i te whakawhitinga wheua, kua tīmata anō a Wenwen ki tana oranga o ia rā me ana akoranga. Kua puāwai ia hei wahine rangatahi māia, ā, kei te whakarite ia mō tētahi tohu nui o tōna ao: ko te whakamātautau whakauru ki te kāreti ā-motu i te marama o Hune.

I a ia e whakaaroaro ana ki tā rāua haerenga, ka whakapuaki te whaea o Wenwen i ētahi akoranga hohonu e rua: "Mā te aroha ka hangaia he merekara, ā, mā te manawanui ka puta te tumanako." E whakanui ana ia ko te aroha pumau o te whānau me te whakapau kaha o ngā tohunga hauora he mea nui hei āwhina i ngā tūroro ki te kimi i te kaha ki te tohe tonu. Te Maimoatanga o te Leukemia he tukanga roa, he tukanga wero hoki, engari mā te manawanui, ka mau tonu te tumanako.

I tēnei rā, ko te kōrero mō Wenwen he mea whakahihiko i ētahi atu whānau e pāngia ana e ngā pakanga rite. "Ki ngā whānau katoa e hikoi ana i tēnei ara, kia mōhio koe ka pahemo te hotoke, ka tae mai te kōanga. Kei te tautoko mātou i a koutou, me te hiahia kia tau te rangimārie me te hauora mō te katoa."