Inkuru y'umurwayi: B-ALL ifite ibyago byinshi, guterwa igufwa ry'umusemburo w'amagufwa ku mezi 9, imyaka ibiri nyuma yaho—Intangiriro nziza ku murwanyi ukiri muto

Mu mezi ya mbere y'ubuzima bwe, Shuo Shuo (izina ry'irihimbano) yahuye n'indwara umwana atagombaga kwihanganira. Afite amezi ane gusa, yasanze afite Leukemia ya B Lymphoblastic (B-ALL) ifite ibyago byinshi byo kuvanga gene ya MLL-AF4, imwe mu ndwara zikomeye kandi zikomeye za kanseri y'amaraso mu bana.

Iyi ndwara yagaragaye nyuma yo gusura ibitaro kubera kuziba izuru, aho ibizamini bye by’amaraso byagaragaje imibare iteye ubwoba—umubare w’uturemangingo tw’amaraso tw’umweru wiyongera kuri 480 × 10 ^ 9 / L, hemoglobin kuri 72g / L, n’udupira twa plaquette kuri 39 × 10 ^ 9 / L. Ibi bimenyetso byerekanaga ko yari afite indwara ikomeye y’amaraso, maze umuryango we, ufite impungenge zikomeye, uhita ushaka ubuvuzi bwihariye mu bitaro bya Yanda Lu Daopei.

Nyuma yo gupimwa by’inyongera, byagaragaye ko indwara ya Shuo Shuo ari MLL-AF4 positive B-ALL, ubwoko bw’indwara ya kanseri y’amaraso ishobora gutera abana bato. Bitewe n’imyaka ye mito n’uburwayi bwe bukomeye, abaganga bamugiriye inama yo gutera uturemangingo tw’umubiri kugira ngo batange amahirwe yo gukira.

Dr. Wei Zhijie, Umuyobozi w’Ishami rishinzwe Gutera Inyongera mu Bitaro bya Yanda Lu Daopei, hamwe n’itsinda rye bakoze gahunda yuzuye yo kuvura. Muri Gicurasi 2022, Shuo Shuo yahawe uburyo bwo kuvura indwara ya chimiotherapie bwatumye akira burundu. Nyuma yaho, yagiriwe imiti ya chimiotherapie ikomeza kugabanya kanseri y’amaraso. Muri icyo gihe, itsinda ry’abaganga ryakomeje kuvugana n’umuryango buri gihe kugira ngo bakurikirane neza uko indwara ye ihagaze.

Muri Kanama 2022, Shuo Shuo, ubu uri mu kiruhuko cy’izabukuru, yatewe uturemangingo tw’amaraso tudafitanye isano na we. Ubu buryo bwagenze neza, aho uturemangingo tw’amaraso ye yera n’uturemangingo tw’amaraso bye byashyizwe mu byumweru bibiri gusa n’iminsi irindwi nyuma yo guterwa uturemangingo. Isuzuma ryakozwe mu igufwa rye ryemeje ko nta turemangingo twanduye twari dufite, kandi yageze ku kigero cya 100% cya chimerism afite urugero rwa MLL-AF4 rwa 0%. Guterwa uturemangingo byagenze neza, kandi amahirwe ya Shuo Shuo yo koroherwa igihe kirekire yariyongereye cyane.

Ariko, urugendo rwo gutera inyamaswa mu mubiri ntirwabuzemo imbogamizi. Shuo Shuo yahuye n'indwara y'uruhu ikabije n'iya kera, yagize ingaruka ku ruhu rwe. Itsinda ry'abaganga ryahise rihindura imiti ye, kandi babyitayeho cyane, ibibyimba byatangiye gucika, kandi muri rusange ubuzima bwe bugenda burushaho kuba bwiza.

Uyu munsi, Shuo Shuo amaze imyaka ibiri n'amezi atatu atewe inshinge. Leukemi ye iracyari mu cyiciro cyo kugabanuka, kandi ageze ku ntambwe ikomeye: gutangira ishuri ry'incuke! Umuryango we wuzuyemo icyizere mu gihe bamureba arushaho gukomera buri munsi.

Ufite imbaraga zo kwihangana, ubutwari, kandi udafite imbaragaShuo Shuo yiteguye kwakira ahazaza, yuzuye inseko, ibitwenge n'ibyishimo byo mu bwana bwe, kubera inkunga y'ikipe ye y'abaganga.