Kōrero mō te Tūroro: Te B-ALL mōrearea nui, te whakawhitinga wheua i te 9 marama, e rua tau i muri mai—He tīmatanga hauora mō te toa taitamariki

2024-11-19

I ngā marama tōmua o te oranga, i pāngia a Shuo Shuo (he ingoa huna) e tētahi mate kāore e tika kia pāngia e tētahi tamaiti. I te whā marama noa iho o tōna pakeketanga, i kitea he mate nui tōna, arā, te Acute B Lymphoblastic Leukemia (B-ALL) me te whakakotahitanga ira MLL-AF4, tētahi o ngā momo mate toto tino uaua me te tino kaha o te tamarikitanga.

11.19.webp

I puta te tātaritanga i muri i tana haerenga ki te hōhipera mō te ihu pupū, ā, i whakaatuhia e āna whakamātautau toto he tau whakamataku—e piki ana te maha o ngā toto toto mā ki te 480×10^9/L, te hemoglobin ki te 72g/L, me ngā platelet ki te 39×10^9/L. I tohu ēnei tohu ki tētahi mate toto kino, ā, i te tino āwangawanga o tōna whānau, ka rapu tonu rātou i te tiaki motuhake ki te Hōhipera o Yanda Lu Daopei.

I muri i te tirotiro anō, i whakaūtia te āhua o Shuo Shuo ko te MLL-AF4 pai B-ALL, he momo mate toto nui mōrearea i roto i ngā pēpi. I runga i tōna taitamarikitanga me te āhua kaha o tōna mate, i tūtohu ngā tākuta kia whakatōkia he pūtau take hei tuku i te whai wāhitanga pai mō te ora.

Nā Tākuta Wei Zhijie, te Kaiwhakahaere o te Tari Whakatō i te Hōhipera Yanda Lu Daopei, me tana tīma i whakawhanake he mahere maimoatanga whānui. I te marama o Mei 2022, i whiwhi a Shuo Shuo i te tikanga rongoā chemotherapy i mutu ai tōna oranga. I muri iho, i whiwhi ia i te chemotherapy whakakotahi hei whakarite kia mau tonu te mate pukupuku toto. I roto i tēnei wā, i pupuri tonu te tīma hauora i te whakawhitiwhiti kōrero me te whānau hei aroturuki i tōna āhua.

I te marama o Ākuhata 2022, i angitu a Shuo Shuo, kua tino ora, i te whakawhitinga pūtau take hematopoietic kāore i te hono ki te kaituku. I pai te haere o te tukanga, ā, i te rua wiki me te whitu rā i muri i te whakawhitinga, ka whakauruhia ōna toto toto mā me ōna pereti toto. I whakaūhia e te koiora wheua whai muri kāore he pūtau kino, ā, i tutuki i a ia te 100% chimerism me te taumata ira MLL-AF4 o te 0%. I angitu te whakawhitinga, ā, i tino pai ake te tūponotanga o Shuo Shuo ki te ora mō te wā roa.

Heoi, kāore i kore ngā wero i roto i te haerenga whakatō. I pāngia a Shuo Shuo e te mate graft-versus-host (GVHD) whakapeka me te mate mau tonu, ā, i pāngia tōna kiri. I tere te whakatikatika a te tīma hauora i āna rongoā, ā, nā tā rātou tiaki kaha, ka tīmata te memeha haere o ngā ponana, ā, ka pai haere tonu tōna āhua whānui.

I tēnei rā, e rua tau me te toru marama a Shuo Shuo i muri i te whakawhitinga. Kei te memeha haere tonu tōna mate toto toto, ā, kua eke ia ki tētahi taumata nui: te tīmatanga ki te kura kōhungahunga! Kī tonu tōna whānau i te tumanako i a rātou e mātakitaki ana i a ia e kaha haere ana i ia rā, i ia rā.

Me te manawanui, te maia, me te kore e ngaruI raro i te tautoko a tana tīma hauora, kua rite a Shuo Shuo ki te awhi i te heke mai, ki tonu i te ataata, te kata, me te harikoa o te tamarikitanga.