He Kōrero mō te Tūroro: Mai i te Tātaritanga AML-M2 ki te Tau Hou o te Whare Wānanga – He Haerenga Rima Tau ki te Whakaora

I te raumati o te tau 2015, i kitea he tamaiti 12-tau te pakeke ko Mingming (ingoa karanga) kei te mate ia i te mate pukupuku myeloid acute (AML-M2). Ko te wā i tika kia noho mārire ia i te tau ono o te kura, kua huri hei haerenga uaua o ngā maimoatanga, ngā noho hōhipera, me te whakapau kaha. I tēnei rā, e rima tau i muri i te whakawhitinga wheua, kua tutuki i a Mingming te whakaoranga engari kua tutuki hoki tana moemoeā ki te tomo ki te whare wānanga.

He Tātaritanga Whakamataku me te Rapunga i te Tumanako

Ko ngā tohu tuatahi o Mingming, tae atu ki te mamae o te wheua me te marutanga e kitea ana, i arahi ki te tātaritanga ohorere o te AML-M2. Ko tōna whānau, e noho ana i tētahi rohe iti i Xinjiang, i tīmata i tētahi haerenga uaua mai i tētahi hōhipera ki tētahi atu ki te rapu i tētahi maimoatanga whai hua. He pakanga ki tonu i ngā wero tinana me ngā wero kare ā-roto, i te mea i pau te wairua o ia me tōna whānau i ngā huringa chemotherapy. Ahakoa te whakatutukitanga o te murunga āhua wāhanga, i noho tonu te ira whakakotahitanga AML1-ETO ki te kitea, e tohu ana i tētahi urupare kāore i oti.

He Tīmatanga Hou i te Hōhipera o Lu Daopei

I te marama o Hune 2016, ka tae atu a Mingming me tōna whānau ki te Hōhipera o Lu Daopei. Whai muri i ngā aromatawai hōhonu, ka tūtohu te tīma hauora, i arahina e Tākuta Zhou Jarui rāua ko Tākuta Wang Jingyu, i tētahi whakawhitinga pūtau take haploidentical hematopoietic mā te whakamahi i tōna pāpā hei kaituku. Nā te manaaki me te tohungatanga o te tīma whakawhitinga i whakatō he tumanako hou me te maia ki roto i a Mingming me tōna whānau.

He uaua te tukanga whakawhitinga. I pāngia a Mingming e ngā raruraru, tae atu ki te mate ate me te mate kiri-whakawhitiwhiti-haumaru (GVHD) me te mate cytomegalovirus (CMV). Heoi, nā te manaaki ngaio me te aroha o te tīma i āwhina ia ia ki te wikitoria i ēnei arai. I te tau 2018, i whakaūtia te allogeneic chimerism ki te 100%, ā, i noho tonu te mate i roto i te whakaoranga i ngā wā aroturuki.

He Moemoeā i Tutuki

Ināianei, e rima tau i muri i te whakawhitinga wheua, kei te ora tonu te hauora o Mingming, ā, kua tutuki i a ia tana whāinga kia haere ki te whare wānanga. I a ia e whakaaroaro ana ki tana haerenga, e mihi nui ana ia ki tōna whānau, ki ngā kaimahi hauora i te Hōhipera o Lu Daopei, me te hapori whānui i tautoko i a ia. Ko te kōrero a Mingming he tohu mō te manawanui me te mana o te tiaki hauora matatau ki te whakarerekē i ngā oranga.

He Karere o te Tumanako

Ki te hunga e pāngia tonu ana e ngā mate rite, ka kōrero a Mingming:
"Kaua e mataku. Kia maia, kia anga whakamua. Kāore koe i te mokemoke i tēnei pakanga. Kei muri i a koe ehara i te mea ko tō whānau anake engari ko te tini o ngā tohunga hauora me te hunga e aroha nui ana ki tō whakaoranga. Mā te mahi tahi, ka taea e tātou te wikitoria i te pōuri o te mate me te awhi i te māramatanga o te ora."